First can I just say that I've, in many ways, avoided blogging about this. It's not that I'm insensitive to the situations around me, but rather I felt I'd be doing an injustice to those who are most effected by it. As one whose mind never turns off, I am always full of thoughts, of questions, of insights usually left unshared. And in such, I have felt inadequate in my own ability to reach out to others - never really knowing what I should or shouldn't say or do. But with too many thoughts running around, I need to do this now.
As many of you who read this know, or have read from other blogs, a young girl is dying of cancer. When she was first diagnosed I remember a feeling of complete denial. I had just returned from visiting my mother, had only been home about an hour, when the phone call came. I didn't recognize Melissa's voice on the other end, and when she told me what was happening, I was in complete shock. All I could think of was "What? No, it was Jeremy who had the close scare. This can't be happening to my friend. It's not real."
For a period of time, we took care of the siblings while the initial tests, surgeries, and beginning chemo were run. All the while I was stealing myself, praying, and doing what I could to try to calm the noticeable fear in Kiara. She didn't know or understand what was happening. All she knew was that her family, at least for a time, had been pulled apart.
I recall when the news came that the tumor had burst. I was on my way to a dentist appointment, but collapsed on my deck in tears I'd yet to shed. Things looked bad. My emotions, kept in check to that point, were too much to deal with. Though I was not the mother involved, Savannah had been apart of my life since a couple months after her birth. She was like another daughter to me.
This was not my first encounter with cancer. But it was the first time the person I knew was so close to me. That night I sat, in the arms of my husband, and cried, asking all the questions there were no real answers to. I somehow figured he'd have the answers since he'd watched his brother die of cancer when they were boys. But such answers are not given or found so easily.
Not long after Savannah's diagnosis, we learned that my step-mother had breast cancer. I was already watching another dear friend go through this, so I had some idea of what would be happening. But my own emotions have swirled around in disbelief and lack of understanding as I started seeing the real world of cancer move in around me.
Eventually, though not willingly, acceptance rolled in. Hope showed its head as treatments appeared to be working. Remissions came and went. Some how it was all just the way it was. Part of life. But at least it was still life.
I'll admit that there have been issues that crept up which I have allowed to push me further away. As I mentioned before, I had a sense of inadequancy. I still do. Never knowing what to do or say. Never knowing if I should do or say anything.
As a seudo-writer, I find great healing in putting my words and feelings on paper. After learning about the tumor bursting nearly 3 years ago, I started to ask questions about what Scott was like and what it was like to watch him go through cancer. I began writing. A year later I finished a piece which I know was inspired by the Lord. Though it was written as a way for me to heal, a way to understand what was really happening, and though it was started because of a dear young girl's fight with cancer, I did not know then how close that story would really come to telling her story. I only knew it was one of the most touching stories I'd written... and one which I could not read very often for the tears it would bring.
Our family learned that the end was near for both Savannah and my step-mother around the same time. A double whammy. Something one does not want ever to hear. And though I still have not figured out how to do more than offer a hug, and a few tears, I have learned so much over the last year.
With my step-mother dying, I have had the opportunity to speak with my father indepth throughout the process. I've heard the pain, the wishing, the acceptance, the frustration, the lack of understanding, and the peace. I've learned to love beyond myself. Accepting another even when there has been history or anger to prevent it in the past. And I've learned to understand certain things which would likely make another cringe or think a person insensitive.
One such thing comes from the comments of "I wish she'd just die so she'd not be in pain". Understanding that it comes from love and not wanting to see the individual suffer any more helps. But more than that, hearing the words "I just want it to be over" makes all too much sense to me. One might see those words as hurtful, selfish, and as though a person did not value the sick individual. But having lived through and heard these words, I understand it has nothing to do with that at all.
There is the part of not wanting to watch a loved one suffer any more. That's a large part of it. But there also comes a point when one finally accepts there is nothing more that can be done. Nothing will make the person better. They will only suffer more. And it is God's will to have this person return home to Him. When you accept this, and when we've been told "two more weeks" or "two more months" or "this is the end" and yet the end continues to go on and on and on and on, you suffer in a whole new way.
It's hard enough to accept that death is coming. But when you've been given the time line, you brace yourself, and prepare for the end to come within that time frame. You have the opportunity to grieve, to accept, and to prepare. When it doesn't happen, there is nothing left to do. You wander in a stupor, waiting. Not knowing how to proceed with life. In fact, life seems to stand still. Though there are things happening, it's not the same. It's almost as if you're dead while living... just waiting... waiting.... waiting... not ever knowing... yet knowing it will happen.
Eventually you move on... living and feeling like things might continue. Then something else happens to remind you that the end is really only around the corner... you just don't know which corner that is.
Peace does not come easily to all. Understanding sometimes does not come at all in this life time. But knowing our Savior loves us, has died that we might all live again, brings comfort. Knowing that families are eternal, and that saving ordiances have been preformed makes it somehow easier to accept at the final stage.
But the thing I've been most fasinated with, have seen the most, and think that I've finally begun to understand is the role of faith in such situations. We've been taught that faith is a hope for things not seen that are true. That, I believe, is a very simplified explanation. A much more advanced definition, I believe, is that faith is accepting the Lord's will even when the answer is no and we do not understand. It is accepting that the Lord really does know best, although we often cannot see how in the moment.
I have seen such faith. I have seen the peace that seems to flow so naturally from such faith. I do not understand it. I don't think I ever will. For I could never imagine being in the situation of watching my own child or spouse die in such a painful and sad way. But I also know that such faith is needed in other situations within our lives; not just at trials involving death.
The words to a Janice Kapp Perry song
"The Test" come to mind - the third verse, I believe:
Tell me loveWhy must you die?Why must your loved onesStand with empty armsAnd ask the question why?Tell me friendIf you understandWhy doesn't he with powerTo raise the deadJust make you whole againIt would be so easy for HimI watch you and in sorrow question whyThey you, my friend, in perfect faith reply"Didn't He say He sent us to be tested?Didn't He say the way would not be sure?But didn't he say we could live with HimForever more, well and wholeIf we but patiently endureAfter the trialWe will be blessedBut this lifeIs the Test"Indeed, this life is the test. A test for each of us. And part of that test is learning to have perfect faith.
And for anyone who might not be able to grasp why, as Latter-Day Saints, we are able to fully accept what to the rest of the world is a tradgety, here's another poem - one used at the funeral of the brother-in-law I never met, and also used at the funeral for a cousin who also passed of cancer several years ago.
God's Child On Loan
"I'll lend to you for a little time,
A child of mine," God said,
"For you to love while she lives
And mourn for when she's dead."
"It may be six or seven years
Or twenty-two or three,
But will you till I call her back,
Take care of her for me?"
"She'll bring her charms to gladden you
And should her stay be brief,
You'll have these precious memories
To comfort you through grief."
"I cannot promise she will stay
Since all from earth return.
But there are lessons taught down there
I want this child to learn."
"I've looked this world over,
In my search for teachers true.
In the crowds of this great land,
I have selected you."
"Now will you give her all your love
Not think the labor vain,
Nor hate me when I come to call
To take her back again?"
I'll leave you with a quote from my story, one which rings true and which speaks to the heart of the message:
"What love gives to life, Death can't undo"